Advisory Groups Ensure Broad Stakeholder Input on PCORI’s Research Funding Priorities
Contact: Christine Stencel, Associate Director of Media Relations (202-570-9275 or firstname.lastname@example.org)
Washington, D.C. (Feb. 25, 2014) – The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors reappointed members of PCORI’s four multi-stakeholder advisory panels to additional terms of one to three years at its meeting today.
In addition, the Board approved the selection of healthcare consultant and patient advocate Linda Crew McNamara, RN, MBA, and Michael Dueñas, OD, Chief Public Health Officer of the American Optometric Association (AOA), to replace outgoing members of two of the panels.
PCORI’s advisory panels bring together insights from patients and other healthcare stakeholders to prioritize critical research questions for possible funding and to ensure that PCORI’s work remains patient-centered. Panel members represent different sectors across the healthcare community, including patients, caregivers, researchers, clinicians, health systems, insurers, employers, and industry.
“The expertise and experience of our advisory panel members have proved invaluable to advancing our work over the past year, and we are pleased that more than 90 percent of them agreed to continue to serve in this capacity,” said PCORI’s Chief Science Officer Bryan Luce, PhD, MBA. “These panels exemplify our commitment to ensuring our work is guided by patients, caregivers, and the broader healthcare community. We welcome our two newest members, whose stellar backgrounds and experience will enrich this important effort.”
The members of PCORI’s first four advisory panels were appointed to one-year terms beginning in April 2013 with the opportunity to be reappointed to a second term. The Board approved a change to staggered terms lasting one, two, or three years as a means to maintain continuity on the panels. Members’ term lengths are determined in a way that ensures ongoing balance in the stakeholder group representation on each panel as well as diversity among members’ backgrounds, institutions, geographic location, race/ethnicity, gender, and experience.
PCORI received 331 applications from individuals interested in filling open seats on the Advisory Panel on Assessment of Prevention, Diagnosis, and Treatment Options (APDTO) and the Advisory Panel on Improving Healthcare Systems (IHS).
McNamara, a registered nurse, healthcare consultant, and co-founder of an organization to advance awareness and understanding of lupus and other autoimmune disorders, will join the APDTO panel. Her former positions include Director of the Joseph F. Sullivan Center, an academic nurse-managed health center at Clemson University, and Vice President of Patient Services for Medical Personnel Pool.
Dueñas will bring his background in both health policy and clinical research to the IHS panel. In his current position at AOA, he is responsible for translating research findings into effective policy at the state and federal levels with the goals of improving health outcomes and the quality of care. His research includes measuring access to care to improve the quality of life for people at all life stages.
The Board also approved the selection of two alternate members for each panel. Jodi Joyce, BSN, RN, MBA, Associate Vice President for Quality and Patient Safety and Interim Chief Nursing Officer at the University of Illinois Hospital and Health Sciences System, is the alternate for the APDTO panel, and Charles Anello, ScM, ScD, founder and biostatistician, Applied Statistical Concepts LLC, is the alternate for the IHS panel.
The Board will consider nominees for PCORI’s two new Advisory Panels on Clinical Trials and on Rare Disease at its meeting on Tuesday, March 11. PCORI received 360 applications for these panels and is carefully reviewing them to ensure that it presents the most qualified and balanced slates of nominees possible.
PCORI’s advisory panels are not policy-making bodies, but their guidance is crucial to the institute’s ongoing effort to ensure that stakeholder input helps refine its research portfolio and other activities. Charters for each panel, including the scope of work for panelists, are available on PCORI’s website.
The Patient-Centered Outcomes Research Institute (PCORI) is an independent, non-profit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continuously seeking input from a broad range of stakeholders to guide its work. More information is available atwww.pcori.org.